Hornung
CA, Eleazer GP, Strothers HS 3rd, Wieland GD, Eng C, McCann R, Sapir M.
Ethnicity and decision-makers in a group of frail older people.
J Am Geriatr Soc 1998;46(3):280-6.
The purpose of this study was to examine whether there were racial differences
in the designation of decision-makers for elderly people who were asked
to consider how their medical care should be handled if they become incompetent.
The sample included patients enrolled in a program to provide community-centered
services to frail elderly people across the country. The dates of enrollment
were not reported.
A substantial number of patients were eliminated from the analyses. Of
1193 patients eligible, 801 had complete data in their medical records
(67%). Thus, selective losses and generalizability must be questioned.
First, there were significant racial differences in whether or not healthcare
choices were noted in the medical records. Hispanics and Asians were less
likely than non-Hispanic whites to have such notes. The difference between
blacks and non-Hispanic whites was not statistically significant.
Second, there were significant racial differences in whether or not the
patients expressed their own health care choices, as opposed to a surrogate:
91.8% of non-Hispanic whites, 86.3% of Hispanics, 82.9% of Asians, but
only 66.7% of blacks expressed their own health care wishes. After controlling
for age, education, gender, marital status, having children and mental
status, whites were twice as likely as blacks and Asians were three times
more likely than blacks to express their own health care choices. Additionally,
whites were eight times more likely, Asians 12 times more likely, and
blacks four times more likely than Hispanics to express their own health
care needs
Finally, there were significant racial differences in who expressed the
health care choices for patients. After adjusting for other variables,
blacks were less likely to have a spouse as a surrogate but more likely
to have a child, particularly a daughter, as a surrogate compared with
whites. The same was true for Hispanic patients. In contrast, Asian patients
were more likely to have a son as their surrogate. Only among blacks,
and particularly among black men, was a relative other than a spouse or
a child a likely surrogate.
The authors conclude that the findings that ethnic minorities are less
likely to express their own health care choices indicate that this group
may have a greater chance of having treatment choices selected that are
at variance with those that would have been selected by the patient. The
authors explain the ethnic differences as possibly reflecting cultural
factors. "The method of decision-making, particularly the importance
of shared decision-making, may be different between ethnic groups, based
on the structure of the family and traditional gender roles and responsibilities."
Religious beliefs might also contribute to this pattern. Finally, the
structure of the family is a likely influence on who was chosen as a surrogate
(daughters for Hispanics and black women, and sons for Asians), 'whereas
black men, often absent from the nuclear family, may have to rely on other
extended family members to be surrogate decision-makers."